Model Boat Mayhem

Please login or register.

Login with username, password and session length.
Pages: 1 [2]   Go Down

Author Topic: Anyone had chemo? How was it?  (Read 1018 times)

roycv

  • Full Mayhemer
  • *****
  • Offline Offline
  • Posts: 2,753
  • Location: S.W. Herts
Re: Anyone had chemo? How was it?
« Reply #25 on: November 14, 2020, 08:25:24 am »

Hi Plastic glad to hear your experiences there is tremendous support both in the forum and the NHS. 

RST kind of you to share your current situation, you only get one mum, they have to be looked after.

Picking up if I may on the mention of ginger.  I would not be surprised to hear anything about its properties, I can recommend the crystalized version to any gentleman not able to get through the night without a nocturnal toilet trip.  I was holding at bay a prostate problem with the stuff.  There s a side effect as it stains the teeth yellow.  Since sorted out with my dentist.

I was with friends many years ago and we had a frozen meal from M&S and I chose Lamb Jalfrezzi and slept through the night, first time for at least a year, I tried the chicken version same thing then checked the ingredients and found ginger and this was the reason.  When I eventually had a prostate Op (benign as it happens) I was still sleeping all night which I do not think the nurses believed.

No intention of hi-jacking the thread but just wanted to emphasize that there seem to be varying claims about ginger and they should not be dismissed as an old wives tale.  Not only that but Ginger covered in dark chocolate is a near heavenly experience for me!  By the way I tried ginger pills and they did not work.

My best wishes to all those with medical conditions on top of our current situation.
Regards
Roy
Logged

rem2007

  • Full Mayhemer
  • *****
  • Offline Offline
  • Posts: 778
  • Location: Burnham-on-sea
Re: Anyone had chemo? How was it?
« Reply #26 on: November 14, 2020, 01:35:04 pm »

Yes,  5 years ago now, persented in my lymph nodes in my neck, surgery, radiation x6 weeks x5 days a week, and chemo x1/week, everyone's experience is totally different, dependent on where the cancer, is. I finished treatment 11.12.15, and basically slept through Christmas that year, woke up on the 27th and asked the wife where the adult girls were and she said she kicked them out as they were arguing, never heard a thing. When I did wake up, I had a fever and an infected stoma, as I was tube fed for x2 months, couldn't swallow, I lost over 11 kg, and ended up in hospital for the anemia and an infection. Went back to work March 1st, those several weeks after treatment were horrid, wouldn't wish it on anyone. I always thought it would be prostate for me as my dad and 2 older brothers had, brothers are fine and much older than me and dad passed in a car accident. Can't praise the NHS at Musgrove in Taunton, they were great and still are, bless them, I figure each day I get now is just a peach, until you've been through it, its all just someone else's story, I'm 5 years good now, but it does change your life, knowing that it lurks behind you, hope this helps, if you ever need a chat, drop me a line, 62 and still going at it, abit slower but hey whats the rush.




Robert :-))

Logged

plastic

  • Full Mayhemer
  • *****
  • Offline Offline
  • Posts: 1,122
  • Bobbing Along!
  • Location: Watford
Re: Anyone had chemo? How was it?
« Reply #27 on: November 14, 2020, 01:54:07 pm »

Hi Robert - Thanks for your response.    Congratulations on beating it - I hope you're feeling well.

It's all the unknowns that are the stress - I know where I am now but I've no idea what condition / health / abilities I will have when I'm done - and for how long before it takes me down permanently.         The treatment they are offering won't stop the cancer, it'll just slow it down so there's no guarantee I'll be any 'better' after - or will I be where I am now, minus a load of weight and strength - I will have been alive for longer than my 3-6 months prognosis - (2 months ago) but not able to *live*.
Logged

plastic

  • Full Mayhemer
  • *****
  • Offline Offline
  • Posts: 1,122
  • Bobbing Along!
  • Location: Watford
Re: Anyone had chemo? How was it?
« Reply #28 on: November 14, 2020, 01:59:30 pm »

Picking up if I may on the mention of ginger.  I would not be surprised to hear anything about it's properties, I can recommend the crystalized version to any gentleman not able to get through the night without a nocturnal toilet trip.  I was holding at bay a prostate problem with the stuff.  There s a side effect as it stains the teeth yellow.  Since sorted out with my dentist.
Roy
Hi Roy - there's a load of anecdotal information about these things - it's one of the things I want to talk about with the oncology nurses as I'd guess they've literally heard and seen it all and so are probably able to give a casual insight on alternatives. 
Logged

plastic

  • Full Mayhemer
  • *****
  • Offline Offline
  • Posts: 1,122
  • Bobbing Along!
  • Location: Watford
Re: Anyone had chemo? How was it?
« Reply #29 on: November 17, 2020, 11:37:21 am »

Starting to panic now.

The paperwork pack turned up late on Thursday and mentioned going for a blood test using the form included - but no form.Nurse rang on Friday and was surprised at no form - but she would e-mail one to me so I could get it done at our drs up the road.   Naturally, nothing arrived.       %)

We spoke to a different nurse on Monday and she said I couldn't use my gp because they are on a different computer system so we had to go to Mt Vernon this morning instead - and the form would be waiting at the blood clinic.

We were there for 9am - no form.   %)       We were sent around to the cancer suite (walking 300yds feels like 20 miles right now) and they had the form there so did the test there. 


This is all getting too random and out of control for my ability to cope.       I'm getting really worried about Friday's chemo when I'll be left for a weekend immediately after with no easy safety net if I have problems    {:-{ .       


Logged

BrianB6

  • Full Mayhemer
  • *****
  • Offline Offline
  • Posts: 1,014
  • I'm not sure if I can get up from here
  • Location: Melbourne
Re: Anyone had chemo? How was it?
« Reply #30 on: November 17, 2020, 09:54:32 pm »

Sounds like you need to give them a piece of you mind.  >>:-(
I must admit that all the cancer staff I have met have been fantastic and very attentive so I pray that things improve.
Logged

plastic

  • Full Mayhemer
  • *****
  • Offline Offline
  • Posts: 1,122
  • Bobbing Along!
  • Location: Watford
Re: Anyone had chemo? How was it?
« Reply #31 on: November 22, 2020, 07:31:09 am »

My 1st chemo was horrendous.      I was there half hour early (1:45) because they said they'd start directly I got there but instead I got shoved into a side room and forgotten about - the infusion started at 3:15 and I wasn't offered and food or drink the whole time - nobody checked on my until just before the end at 5pm.    While getting ready to go home I was hit by unbelievable pain - thought I was going to die - held onto the bed so hard that I've pulled muscles in my arm - pressed the alarm-  no-one came.Eventually a nurse wandered in and said she would get a doctor - no-one came.    Eventually decided to leave but none of the next appointment paper work was done

Total disaster.

Tried taking the pills at home but keep throwing up.     unable to eat / keep food down.    I'm looking like a Belsen victim - my body is deteriorating really fast.      Need to speak to the oncologists but I think Christmas might be a distant dream for me.

Logged

rnli12

  • Full Mayhemer
  • *****
  • Offline Offline
  • Posts: 624
  • Location: Cornwall
Re: Anyone had chemo? How was it?
« Reply #32 on: November 22, 2020, 09:35:23 am »

Not many words I can use that would express my thoughts sufficiently, my thoughts to you and you family.
Logged
Regards,

Rich

plastic

  • Full Mayhemer
  • *****
  • Offline Offline
  • Posts: 1,122
  • Bobbing Along!
  • Location: Watford
Re: Anyone had chemo? How was it?
« Reply #33 on: November 22, 2020, 10:52:17 am »

Thanks Rich

This is all so scary.     The infusion causes nerve problems so it's like holding a Hornby track - constant 12v shocks in my hands and extremities.    I feel really sick and another of the pills had me on the floor with stabbing pain, sweating buckets and shaking like a leaf again.      I don't know how much longer I can live like this.   <:(
Logged

Tug Fanatic

  • Full Mayhemer
  • *****
  • Offline Offline
  • Posts: 1,855
  • Location: England
Re: Anyone had chemo? How was it?
« Reply #34 on: November 22, 2020, 12:04:47 pm »

There is nothing that we can say which is going to help. It sounds like you have been treated really badly by those who should be caring for you. All you can do is to make a fuss and try to get better treatment. You shouldn't be left in this situation.
My thought are with you all.
Logged

plastic

  • Full Mayhemer
  • *****
  • Offline Offline
  • Posts: 1,122
  • Bobbing Along!
  • Location: Watford
Re: Anyone had chemo? How was it?
« Reply #35 on: November 22, 2020, 12:47:10 pm »

Thanks for your thoughts

My wife will be tearing the hospital a new one in the morning.   :-)) 
Logged

barriew

  • Full Mayhemer
  • *****
  • Online Online
  • Posts: 2,084
  • Location: Thaxted, Essex
Re: Anyone had chemo? How was it?
« Reply #36 on: November 22, 2020, 01:14:56 pm »

Have you contacted the Macmillan Nurses? They can offer you support in dealing with your pain and with the hospital. Your experience is so contrary to my wife's and my own during cancer treatment at our local hospital it is unbelievable.


Barrie
Logged
Pages: 1 [2]   Go Up